The International MPS Network is the official body of the patient associations representing MPS and MPS Societies at a European and global level. The aims of the Network are:
To act as an independent forum for MPS Societies and relevant patient associations at a European and global level, including supporting each other and emerging new patient organisations representing MPS.
To promote the well-being of those affected by Mucopolysaccharide and related Lysosomal diseases through the best practices of clinical diagnosis, management and treatment.
To promote public and professional awareness of Mucopolysaccharide and related Lysosomal diseases.
To oversee the nominations for an MPS Society or relevant patient association to host the International Symposium on Mucopolysaccharide Diseases and to preside over the decision making, forward planning and reporting.
To identify research priorities and potential collaborations and where appropriate, work in partnership with the academic community and the pharmaceutical industry.
To develop relationships and partnerships with other Lysosomal Storage Disease Groups for the purposes of collaboration and joint learning.
